{"id":1616,"date":"2022-02-19T12:18:27","date_gmt":"2022-02-19T11:18:27","guid":{"rendered":"https:\/\/silapacientu.cz\/ehp-funds\/"},"modified":"2024-05-30T17:30:24","modified_gmt":"2024-05-30T15:30:24","slug":"ehp-funds","status":"publish","type":"page","link":"https:\/\/silapacientu.cz\/en\/ehp-funds\/","title":{"rendered":"EHP FUNDS"},"content":{"rendered":"\t\t
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(Funded by EHP Funds 2014\u20132021)<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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The Health Programme<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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TOGETHER FOR A GREEN, COMPETITIVE, AND INCLUSIVE EUROPE<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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The establishment and development of the National Association of Patient Organizations (NAPO) is funded by the EEA Grants<\/a>2014\u20132021 under the Health Program.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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ABOUT THE PROJECT <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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The purpose of the project is to strengthen the role of patients and the position of patient organizations in the health sector by establishing an umbrella patient organization with a sufficiently representative membership base to represent the interests of patients across diagnostic groups and to develop the patient organization segment. An umbrella patient organization is a grassroots initiative of patient organizations themselves, which meet the definition of a patient organization \u2013 in particular, the condition of leadership or majority participation in the leadership and management of the organization by patients themselves. The basic principles of NAPO\u2019s organization and activities are transparency, legitimacy, democracy, representativeness, and accountability.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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PROJECT OUTPUT<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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The main outputs of the project are the establishment of NAPO, the establishment of its headquarters, and the operation of the organization; the expansion of the membership base; the establishment of the main information and communication platforms; information service for patient organizations (e.g., the establishment of the EUPATI national reference point) and activities to strengthen the capacity of individual patient organizations.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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PROJECT PREPARATION<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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The preparation for the establishment and development of NAPO was ensured by eleven organizations associated in the NAPO Preparatory Committee, which emerged from consultations with all patient organizations in November 2020. The constitutive meeting was held on 17 November 2021, and the registered association was established in February 2022 by registration in the Federal Register. Preliminary interest in NAPO membership was expressed by 69 patient organizations, with whom the preparatory committee was in continuous contact.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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FOREIGN PARTNERSHIPS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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The foreign partner organization is Funksjonshemmedes Fellesorganisasjon<\/a>(FFO) \u2013 the Norwegian umbrella organization representing 70% of all patient organizations in the country. It operates nationwide, representing both purely patient organizations and organizations, and associations of disabled people. FFO\u2019s main focus is advocacy activities and services for member organizations (capacity building, legal services, joint advocacy work). FFO is a member of the European network of patient organizations EPF.<\/p>\n

For NAPO, the cooperation of the EPFO means the possibility of transferring know-how and examples of good practice in three areas \u2013 the establishment, development, and professional capacity building of the umbrella organization; advocacy activities and involvement of patients in decision-making processes in the health sector through the umbrella organization; and the development of services for members of the umbrella patient organization. The NAPO Steering Committee has been in informal contact with the SFO since March 2021.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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PROJECT IMPLEMENTATION PROCESS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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February 2022<\/strong><\/p>

NAPO registered in the Federal Register<\/p>

Director, project manager recruited<\/p>

Memorandum of Cooperation with AIFP signed<\/a><\/p>

Website launched<\/p>

March 2022<\/strong><\/p>

Help for Ukraine incl. an online meeting of patient organizations to share experience and information (in cooperation with the Dept. of Patient Rights Support, the Ministry of Health)\u00a0<\/p>

Participation in a round table on telemedicine in the Senate<\/p>

Recruiting new patient organizations<\/p>

Advocacy forum concerning sustainable financial support for patient organizations<\/p>

April 2022<\/strong><\/p>

An online meeting of patient organizations focused on help for Ukrainian patients (in cooperation with the Ministry of Labour and Social Issues)<\/p>

EPF Memberhip<\/p>

Partnership with PACT<\/p>

May 2022<\/strong><\/p>

Online meeting with FFO (Norwegian patient organization, a NAPO partner)<\/p>

NAPO Member Board Meeting \u2013 admission of 11 new members<\/p>

Participation at the patient Hub conference on sustainable funding of patient organizations (key note, panel discussion)<\/p>

NAPO breakfast with the media<\/p>

A meeting with the Association of Pharmacy Chains about remote dispensing of medicines<\/p>

Online meeting of NAPO members to discuss sustainable funding of patient organizations<\/p>

June 2022<\/strong><\/p>

A meeting with the Head of the Ombudsman in Healthcare Association<\/p>

Negotiations with EFPIA about a partnership of the CEE Patient Engagement Annual Forum 2022<\/p>

A start of preparations of the NAPO conference at the occasion of the Czech presidency of the Council of the EU<\/p>

A meeting with Josef Pavlovic, the Deputy Minister of Health<\/p>

Signing a memorandum of cooperation with the State Istitute for Drug Control<\/p>

Participation at the EPF Confress, Brussels<\/p>

The second meeting of NAPO member organizations abou sustainable funding of patient organizations<\/p>

July 2022<\/strong><\/p>

NAPO conference \u2013 preparations, registrations\u00a0<\/p>

Online meeting focused on Lex Ukrajina II<\/p>

August 2022<\/strong>\u00a0<\/p>

NAPO conference \u2013 preparations<\/p>

A meeting with \u010cAP a \u010cAFF concerning the right to be forgotten<\/p>

A meeting with the Czech National Disability Council<\/p>

A meeting with Radek Policar, the Deputy Minister of Health for legislation and law<\/p>

Sustainable funding of patient organizations \u2013 discussion about NAPO draft with non-member patient organizations<\/p>

A meeting of the Patient Council working group focused on sustainable funding of patient organizations \u2013 introduction of the NAPO draft<\/p>

Participation at the APO summer school<\/p>

September 2022<\/strong><\/p>

International NAPO conference at the occassion of the Czech presidency of the Council of the EU<\/p>

A meeting with the Association od manufacturers and Suppliers of Medical Devices<\/p>

Negotiations with WHO about opening a position of a Patient Community Coordinator for Ukraine<\/p>

Participation at a kick off meeting regarding opening a Czech EUPATI platform<\/p>

The second NAPO Member Board meeting \u2013 admission of 13 new members<\/p>

October 2022<\/strong><\/p>

Organization of a round table on telemedicine \u2013 law, reimbursement and technological aspects<\/span><\/span><\/p>

Participation at the UNHCR inter-agency workshop \u2013 Refugee Response Plan for Ukraine<\/p>

A fundraiser recruited, a fundraising strategy created<\/p>

Advertising of a new position \u2013 Patient Community Coordinator, in cooperation with WHO and the Czech Ministry of Health.<\/p>

November 2022<\/strong><\/p>

Participation in the Fundraising Mini School at the Patient Hub<\/p>

Participation in a discussion panel at “EHDS as an effective tool for improving healthcare in the EU” conference<\/p>

Participation at the “Digital medicine (not only) for patients” conference. Previous year at this conference we presented a document with 10 rules for telemedicine from the patients’ perspective.\u00a0<\/p>

First meeting of the Expert group for systemic change of funding of NGOs created by the Government Council for NGOs at the Government Office. NAPO is a member of the group.\u00a0<\/p>

NAPO strategic planning<\/p>

A meeting with the Psychosomatic Medicine Society<\/p>

December 2022<\/strong><\/p>

Participation at APO Alumni VII<\/u><\/u><\/p>

A meeting with V. Finsterle, a representative of Lekarna.cz, exploring patients’ needs towards pharmacists<\/p>

A lecture by A. Tichop\u00e1d (CzechHTA, Faculty of Biomedicine Engineering, Czech technical University) about HTA\u00a0<\/p>

A regular meeting with the Dept. for Support of Patients’ Rights, Ministry of Health<\/p>

NAPO concert for member organizations and partners in the Jerusalem synagogue<\/p>

January 2023<\/strong><\/p>

A meeting with the Czech Parmacist Chamber to discuss vaccination in pharmacies, emergency dispensing of medicines etc.\u00a0<\/p>

Graduation in the Fundraising Minischool (Pacient Hub)<\/p>

WHO A Year in Review – a meeting at the Residence of the Mayor of Prague at the opportunity of inauguration of the new WHO CZ Director<\/p>

Opening negotiations with the Ministry of Health regarding a trasfer of the Patient Hub<\/p>

NAPO strategic planning, 2nd part<\/p>

Online consultation with our partner patient organization FFO, Norway<\/p>

Audit of our project conducted by the Ministry of Health<\/p>

February 2023<\/strong><\/p>

Participation at the intense course “Involving patients in HTA processes” organized by the Dept. of Patient Rights Support at the Ministry of Health and APO.\u00a0<\/p>

Conclusion of a series of consultations within the Advocacy Forum<\/p>

Kick off meeting with EY concerning the analysis of financial benefits of patient organizations\u00a0<\/p>

Meeting of the project management with working groups guarantors \u2013 setting up of work flow and rulese<\/p>

Lecture by RNDr. Marian Ryb\u00e1\u0159 on evaluation of the quality of healthcare<\/p>

March 2023<\/strong><\/p>

Participation at a lecture on AI in healthcare by Carebot\u00a0<\/p>

A meeting concerning further cooperation with SYRI National Institute<\/p>

Negotiations about cooperation of NAPO with the Ministry of Health on education of students of medicine<\/p>

Screening of the Intense Life Unit documentary follwed by a discussion with a specialist in paliative medicine MUDr. Ond\u0159ej Kopeck\u00fd<\/p>

Signing a contract with WHO for \u201cSupporting Ukrainian refugees
with access to health and social services” project implemented by NAPO<\/p>

Participation at AI bootcamp Data Saves Lives in Lisbon<\/p>

Participation of two NAPO representatives in the first series of EUPATI online course<\/p>

April 2023<\/strong><\/p>

NAPO Member Board Meeting \u2013 a number of members rising to 42<\/p>

Participation of NAPO at the Social Services Law Working Group (3\/4)<\/p>

The European Patients’ Rights Day information campaign (18\/4)<\/p>

Webinar by the Society for Psychosomatic Medicine \u010cLS JEP<\/p>

NAPO joining the Zdravotnictv\u00ed 2030+ initiative<\/p>

A meeting at the Ministry of Health concerning opening a position of a coordinator for UA patients transports (26\/4)<\/u><\/u><\/p>

Participation of NAPO in thematic subgroups (multi-year funding and umbrella organizations) in the Expert group for systemic change of funding of NGOs at the Government Office.\u00a0<\/p>

<\/u><\/u>EPF Annual Conference \u2013 NAPO became a full member<\/p>

A coordinator of Support for UA Patients Project \u2013 onboarding, preparation of a survey<\/p>

May 2023<\/strong><\/p>

2.5. Participation at the meeting of the work group for sustainable funding of patient organizations of the Minister of Health’s Patient Council\u00a0<\/p>

18.5. Round table discussing sustainable funding of patient organizations, the Ministry of Health\u00a0<\/p>

10.5. Webinar on EHDS organized by the NAPO work group for digital medicine<\/p>

12.5. Meeting with the Czech Chamber of Pharmacists on emergency disposal of medicines<\/p>

30.5. Medic Caf\u00e9\u00a0 – presentation of educational programme for medicine students focused on work of patient organizations (starting autumn 2023)<\/p>

31.5. Submission of the analysis of health and social system literacy among UA refugees in CZ, WHO project<\/p>

June 2023<\/strong><\/p>

Meeting with the Czech Medical Association of J. E. Purkyn\u011b\u00a0<\/p>

Memorandum of cooperation with the Military University Hospital Prague signed, an intent to establish a Patient Council<\/p>

Memorandum of cooperation with the Association of Ombudsmen in Healthcare<\/p>

Meeting with the Ministry of Labour and Social Issues –\u00a0 establishing regular meeting, a plan to establish a platform<\/p>

A participation at a meeting discussing the sustainability of the Patient Hub project with the Ministry of Finance and the Ministry of Health<\/p>

NAPO representative taking part in national EUPATI training module<\/p>

14.6. Participation at the Prague 13 Health Day<\/p>

30.6. Submission of the analysis of needs of UA patiens transfered to Czech hospitals, WHO project<\/p>

Fundraising campaign \u2013 NAPO pronounced a NGO of the month in Caf\u00e9 Nezisk<\/p>

July 2023<\/strong><\/p>

Patient Forum 2023 \u2013 start of preparations, dissemination of Save the Date<\/p>

WHO project \u2013 a meeting with WHO and the Ministry of Health to evaluate submitted analyses, continuation in UA patients case management<\/p>

Survey of attitudes of patients and doctors towards preventive check-ups done by NAPO and Ministr zdrav\u00ed \u2013 publication of results<\/p>

Negotiations with the Patient Hub regarding take-over of their selected activities<\/p>

Recruitment of a new NAPO director<\/p>

August 2023<\/strong><\/p>

Conclusion of the selection procedure for the position of NAPO Executive Director<\/p>

Preparations for the Patient Forum 2023 conference – registration open<\/p>

Signing of the Memorandum of Cooperation with Active Citizenship Network<\/p>

Finalisation of negotiations with the Patient Hub, agreement to produce a video on the activities of patient organisations<\/p>

Negotiations with the Ministry of Finance and the Ministry of Health concerning a grant to finance the bilateral initiative EEA and Norway Grants 2014-2021 – an international conference to share good practice of patient organisations and cooperation with Norwegian partners<\/p>

Participation in the APO Summer School on the regulation of promotion of medicinal products<\/p>

September 2023<\/strong><\/p>

Cooperation with the Czech Professional Society of Clinical Pharmacy established<\/p>

Negotiations with the\u00a0Prague University of Economics and Business\u00a0regarding participation of NAPO in the project of financial protection of households with chronic patients within the Jan \u00c1mos Komensk\u00fd Operational Programme (OP JAK)<\/p>

EY analysis of the value of services provided by patient organisations – presentation of results to the media and member organizations<\/a><\/p>

Participation in the Active Citizenship Network webinar on the benefits of vaccination, participation in the campaign on social media<\/p>

Completion of the WHO project to improve access to medical care for Ukrainian refugees in the Czech Republic, participation in the WHO foreign mission consultation with Czech NGOs<\/p>

Launch of a questionnaire on the attitude of patient organisations towards partnerships with pharmaceutical companies<\/p>

Preparation of the NAPO Patients’ Forum Conference<\/p>

October 2023<\/strong><\/p>

Participation at 2024 Refugee Response Planning \u2013 WHO strategic planning workshopu on Ukrainian refugees<\/p>

Meeting of EEA project implementers from patient organizations in the Patient Hub<\/p>

Lifmat conference under the auspices of NAPO<\/p>

First meeting of the newly established working group for Patients’ Rights at the MoH<\/p>

Patient Forum 2023 \u2013 NAPO annual conference<\/p>

Signing of the Memorandum of Mutual Cooperation with the Czech Medical Society of J. E. Purkyn\u011b<\/p>

November 2023<\/strong><\/p>

Participation in the roundtable on Nonprofits and the Legislative<\/p>

Process in the Chamber of Deputies of the Czech Republic<\/p>

Participation in the Patient Hub conference<\/p>

High Level Forum meeting (AIFP, Pfizer, Novonordisk)<\/p>

Participation in EPF Member Cicrle: Youth Involvement in Patient Organisations<\/p>

Publication of an awareness raising video on patient organisations<\/p>

NAPO pre-Christmas meeting with partners and patient organizations: Concert for good souls<\/p>

Presentations by E. M\u00fcllerov\u00e1 and V. Milata at the conference Digital Medicine (not only) for Patients<\/p>

The right to be forgotten: the release of the the Czech Insurance Association of\u00a0 self-regulatory standard for life insurance clients after cancer<\/p>

December 2023<\/strong><\/p>

NAPO Vice Chair Edita M\u00fcller’s address at APO Alumni VIII<\/p>

Participation in the meeting of the Ministry of Health working group on patients’ rights<\/p>

Presentation by Hong Van Tran at WHO – End-of-Year Review Meeting for the Ukraine Refugee Response Program in the Czech Republic<\/p>

Participation in Active Citizenship Network webinar on reducing AMR through vaccination<\/p>

Participation in the Expert Group Meeting on Systemic Change of State Budget Funding for Public Services and Activities<\/p>

January 2024<\/strong><\/p>

Meetings with NAPO working groups – setting plans and communications for 2024<\/p>

Launch of FB awareness campaign for Ukrainians with MSD support<\/p>

Meeting with the Czech Insurance Association on the right to be forgotten<\/p>

Participation in the seminar on Increasing the Efficiency of Czech Healthcare and the Growth of the Czech Economy in the Chamber of Deputies<\/p>

Launch of the WHO 2 project aimed at improving access to medical care for Ukrainians in the Czech Republic<\/p>

February 2024<\/strong><\/p>

Participation in a roundtable on mail order dispensing of Rx drugs<\/p>

Press release on changes to the care allowance and the removal of the VAT refund on car purchases<\/p>

Participation in High-Level Conference on Ending Discrimination Against Cancer Survivors<\/p>

Participation in EPF Members’ Circle on the European Elections<\/p>

NAPO webinar for patient organizations on clinical pharmacology<\/p>

Implementation of an awareness campaign with the support of MSD<\/p>

Meetings with migration NGOs in the framework of the WHO2 project<\/p>

March 2024<\/strong><\/p>

NAPO membership meeting, admission of five new members<\/p>

Online consultation with Norwegian partner organization FFO on mail order prescription drug dispensing<\/p>

Letter to the Ministers of Finance and Labour and Social Affairs regarding the abolition of VAT refunds on car purchases for people with disabilities<\/p>

Submission of comments on the amendment to the Public Health Protection Act<\/p>

Sample seminar on Person-Centred Care at the 3rd Medical Faculty of the Charles University<\/p>

Webinar on trademark<\/p>

Launch of FB awareness campaign targeting Ukrainian refugees as part of WHO project<\/p>

April 2024<\/strong><\/p>

Replies from Ministers Stanjura and Jure\u010dka to our letter about the VAT refund for people with health problems received\u00a0<\/p>

All MPs contacted with our request to vote in favour of the amendments to the Social Services Act, which increased the care allowance even in level 1. We followed the vote of the House of Commons in the 3rd reading.<\/p>

Participation at the Health Committee meeting – discussing an amendment to amend the definition of a patient organisation in the Health Services Act<\/p>

Press conference on mail order dispensing of prescription drugs, on the occasion of the end of support from EEA funds, Health Programme<\/p>

18. 4. Awareness campaign on European Patients’ Rights Day – “What is the EU doing for your patient rights?”<\/p>

Participation of NAPO Vice-President E. M\u00fcllerov\u00e1 in a panel at the Minister of Health’s conference on the digitalisation of healthcare <\/p>

Memorandum of Cooperation signed with the Institute of Health Literacy<\/p>

WHO project – round table on the upcoming information portal for migrant NGOs<\/p>

Webinar Introduction to vaccination – vaccination against respiratory diseases, MUDr. Z. Blechov\u00e1<\/p>

Webinar on generic medicines and biosimilars, Filip Vrubel, \u010cAFF<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

(Funded by EHP Funds 2014\u20132021) The Health Programme TOGETHER FOR A GREEN, COMPETITIVE, AND INCLUSIVE EUROPE The establishment and development of the National Association of Patient Organizations (NAPO) is funded by the EEA Grants2014\u20132021 under the Health Program. ABOUT THE PROJECT The purpose of the project is to strengthen the role of patients and the […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"inline_featured_image":false,"_mc_calendar":[],"footnotes":""},"class_list":["post-1616","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/pages\/1616","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/comments?post=1616"}],"version-history":[{"count":5,"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/pages\/1616\/revisions"}],"predecessor-version":[{"id":8928,"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/pages\/1616\/revisions\/8928"}],"wp:attachment":[{"href":"https:\/\/silapacientu.cz\/en\/wp-json\/wp\/v2\/media?parent=1616"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}